Researcher, Storyteller, Speaker.

I research what happens when medicine fails to see clearly: invisible illnesses, contested diagnoses, and the patients who fall through the cracks. My work examines solutions to the medically orphaned.


Talks & Presentations


Leah Huyghe

About Leah

I'm a designer, researcher and writer working at the intersection of patient experience, chronic illness advocacy and unconventional medicine.

My own experience with chronic Lyme disease sparked this work. What began as a personal crisis became a personal pursuit: understanding why some illnesses remain invisible, and what happens when medicine reaches its limits. I'm interested in contested diagnoses, the role of narrative in healing, and creating tools that honor patient perspectives.

I came to this work through product design and UX research. The core skill is the same: listening to people whose experiences are overlooked, and translating feedback into solutions.

I also serve on the board of Rose Charities Canada, where I support their eye care & Ophthalmology project supporting Vision Together Nepal. We bring eye care to people living in the Mount Everest region, Upper Dolpo, and other remote locations with no access to vision services.

I donate 1-5% of my annual income to causes that support Lyme disease awareness, advance research, or support patients.


Articles & Papers

My research focuses on chronic Lyme disease and tick-borne illness, examining conditions where patients often struggle to be believed.

01

Words of Despair: Lexical Patterns Reflecting Mental Health Challenges in Lyme Disease

2023 • Huyghe, L.

An analysis of language patterns in chronic Lyme disease patient communities, revealing the psychological toll of contested diagnoses and the lexical markers of mental health challenges.

Publication Coming Soon

More Spoons

Gentle guidance: Answers in your hands

More Spoons is a conversational tool designed to help you reflect, reframe, and reconnect, whether you're managing your own care or supporting someone you love.

A unique tool for self-care and deeper connection with your body. Draw a card to receive guidance that helps reduce stress, improve well-being, and discover new solutions for physical and emotional balance.

Gently shifts the way you talk to yourself, from frustration to understanding
Created by someone who's been through it, not a distant wellness brand
Use with caregivers, friends, or therapists to explore what really matters
Learn More

Fragments

A Memoir
Leah Huyghe
Coming 2027

Fragments

A memoir on reclaiming wholeness

After years of chronic illness fragmented my sense of self, I began the slow work of piecing myself back together. This memoir traces that journey: the shattering, the searching, and the unexpected grace of becoming whole again.


Coaching for Chronic Lyme Patients

Navigating chronic Lyme disease is one of the most isolating experiences a person can face. The medical uncertainty, the doubt from others, the endless search for answers. I've been there, and I know how much it helps to have someone in your corner who truly understands.

I offer one-on-one coaching sessions for individuals dealing with chronic Lyme and other tick-borne illnesses & co-infectants. This isn't medical advice. It's peer support, practical strategies, and a space to feel heard.

1:1 Sessions

What I Offer

Compassionate support from someone who has walked this path and emerged with hard-won insights to share.

  • Help navigating the healthcare system and advocating for yourself
  • Strategies for managing uncertainty and building resilience
  • A judgment-free space to process your experience
  • Connecting with communities, Lyme-literate medical doctors and additional resources
Book a Session

Let's Connect

Whether you're interested in collaboration or discussing speaking opportunities, I'd love to hear from you.